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NBIA Disorders Association

Neurodegeneration w/ Brain Iron Accumulation

Self Help Clearinghouse

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NBIA Disorders Association

International network. Founded 1996. Provides emotional support to families affected by neurodegeneration with brain iron accumulation, a grouo of rare progressive neurological disorders with high brain iron and a movement disorder, along with various other symptoms. Educates public on NBIA, supports and monitors research and awards research grants. Newsletter, literature, bi-annual conferences, online listserv, family networking program and advocacy efforts.
Write:
NBIA Disorders Association
2082 Monaco Ct.
El Cajon, CA 92109-4235
Voice: 619-588-2315
Fax: 619-588-4093
Website: http://www.nbiadisorders.org
E-mail: info@nbiadisorders.org
Verified: 7/12/2012

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Topic Contents

Neurodegeneration w/ Brain Iron Accumulation

Self Help Clearinghouse

NBIA Disorders Association

Fletcher Allen (FAHC) - Burlington Vermont Hospital