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Leber Hereditary Optic Neuropathy
National Organization for Rare Disorders, Inc.
It is possible that the main title of the report Leber Hereditary Optic Neuropathy is not the name you expected. Please check the synonyms listing to find the alternate name(s) and disorder subdivision(s) covered by this report.
- Hereditary Optic Neuroretinopathy
- Leber's Disease
- Leber's Optic Neuropathy (LHON)
- Leber's Optic Atrophy
Leber hereditary optic neuropathy (LHON) is a rare inherited disorder of the eye that is characterized by the relatively slow, painless, progressive loss of vision. This disorder can initially affect one eye or both, but both eyes are usually affected within six months. In most cases, visual loss is permanent. LHON is a genetic disorder that occurs as the result of a mutation in the mitochondrial DNA that is inherited from the mother or arises as a new sporadic mitochondrial DNA mutation.
111 E 59th St
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United Mitochondrial Disease Foundation
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Pittsburgh, PA 15239
National Association for Parents of Children with Visual Impairments (NAPVI)
P.O. Box 317
Watertown, MA 02272-0317
National Federation of the Blind
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at Jernigan Place
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American Foundation for the Blind
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American Council of the Blind
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Guiding Eyes for the Blind, Inc.
611 Granite Springs Road
Yorktown Heights, NY 10598
NIH/National Eye Institute
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Blind Children's Center
4120 Marathon Street
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International Foundation for Optic Nerve Disease (IFOND)
PO Box 777
Cornwall, NY 12518
MUMS National Parent-to-Parent Network
150 Custer Court
Green Bay, WI 54301-1243
MD Support - The Eyes of the Macular Degeneration Community
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Grandview, MO 64030
Genetic and Rare Diseases (GARD) Information Center
PO Box 8126
Gaithersburg, MD 20898-8126
14 Pembroke Street
Medford, MA 02155
For a Complete Report
This is an abstract of a report from the National Organization for Rare Disorders (NORD). A copy of the complete report can be downloaded free from the NORD website for registered users. The complete report contains additional information including symptoms, causes, affected population, related disorders, standard and investigational therapies (if available), and references from medical literature. For a full-text version of this topic, go to www.rarediseases.org and click on Rare Disease Database under "Rare Disease Information".
The information provided in this report is not intended for diagnostic purposes. It is provided for informational purposes only. NORD recommends that affected individuals seek the advice or counsel of their own personal physicians.
It is possible that the title of this topic is not the name you selected. Please check the Synonyms listing to find the alternate name(s) and Disorder Subdivision(s) covered by this report
This disease entry is based upon medical information available through the date at the end of the topic. Since NORD's resources are limited, it is not possible to keep every entry in the Rare Disease Database completely current and accurate. Please check with the agencies listed in the Resources section for the most current information about this disorder.
For additional information and assistance about rare disorders, please contact the National Organization for Rare Disorders at P.O. Box 1968, Danbury, CT 06813-1968; phone (203) 744-0100; web site www.rarediseases.org or email firstname.lastname@example.org
Last Updated: 4/18/2008
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